I woke up today at first light to one of these incredible
West Coast Summer days. The cold of night still in the air, dew on the grass,
steam lazily coming off the perfectly mirrored lake surface. A doe and her two
little fawns happily hopping around their mom, the birds singing, woodpeckers
doing the rhythm sections, and you have the first scene out of Walt Disney's Bambi movie. You could nearly hear
the romantic mandolin music in the background.
Now picture yourself in that scene
with freshly brewed coffee, and you have to agree that it can hardly be more
perfect than this. After taking this in for at least half an hour I turn on the
television news and watch with amazement the politicians making each other's
life miserable. Boy, did they get it wrong! The reason for this lyrical and
cliched outburst, and I promise I will never do this again, is simply to show
how incredibly good life can be even for people who have a little better
insight in their time line, or rather the end thereof. Of course all of this
would be meaningless if we did not get to share this corner of paradise with
friends and family of whom so many have visited us. We indeed consider
ourselves fortunate. What may be most important is the humor friends and family
bring. We laugh a lot and the morbid humor is getting to an exceptionally good
level. Keep it coming!
It was hardly a surprise when the decision to change from
immunotherapy drugs to a more
traditional chemotherapy in pill form was confirmed two weeks ago. To process the
fact that this also confirmed there will not be a cure or significant extension
of life did not take more than two gulps of air, and 3 minutes later we were
onto more important subjects, like where to have cocktails. The tumors in the
right pelvis have slowed me down and I walk with a limp, but that may end soon.
In the last blog I speculated about getting radiation and guess what: we had
the MRI, seen the radiologist, got measured for the cast, had 5 treatments, got my diploma and big hugs from
all 5 cute technologists. I hope the testosterone on my chest did not rub off
on them, else the technologists may now sport mustaches and speak in deep
baritone voices.
Bonnie and I enjoyed the continuation of the World Cup
with Holland still in the race. What excitement! We watched the unfortunate
disintegration of the Brazil team against the Germans, Holland going from
trailing Mexico by 1 goal to scoring twice in the last 6 minutes. The games
were surprising and we were watching history being made. We were thrilled by
how cool and composed the Dutch Team took their PK's against Costa Rica and how
that sly fox Van Gaal changed his goalie in the last minute before the end of
the game, and had to watch in total agony how Vlaar took a 30 yard run like a
Sunday Morning Amateur to shoot right in the hands of the Argentinian goal
keeper. This last loss was NOT my fault. I had to do a CT scan right in the
middle of this game and as you can see I kept my orange hat on! No Compromises! The hat tested tumor free and is ready for the next world cup in Russia. Sara and her kids watched the game at our house, which was a nice bonus for the grandparents, but our grandkids may not yet have the same appreciation for the game. We are working on that.
A Holland Fan through thick and thin. |
We had a busy schedule of visits to oncologists,
radiologists, blood draws for lab testing, CT scan and there was barely a
day without some kind of medical event. Of the few times I visited medical
providers in the Philadelphia area, I cannot remember one visit where the
consult actually started on the appointed time. Not so in the Providence
Medical Network, because that organization runs like clockwork, and a medical
appointment leaves time to do other things on our busy schedule.
Terry and Fernanda at Stonecliff Inn |
Since he is helping us make lots of money, he is also of course in the column of professional contacts but it is so much nicer to work together in a friendly atmosphere with complete trust. Bonnie, Terry and I had a real old-fashioned (for me at least) meeting with a real agenda, and then all of us managed to do a delicious lunch at the Stone Cliff Inn without talking shop during the meal. Now that is real friendship.
Harry is ready for a nap! |
Always thinking of you and praying for you and the family! Love the hat ... you look marvelous! Nice to see pictures of your friends and loved ones on the blog! Miss you lots!!
ReplyDeleteDear Barend,
ReplyDeleteYour most recent post was indeed lyrical and inspiring! You and Bonnie have handled this difficult time with such a splendid attitude, it makes us feel honored to know you. Keep plugging! You are much loved and admired by people who haven't seen you for many many years. Janet and Grattan
Barend,
ReplyDeleteIt's always nice to read your blog and see that you keep that sense of humor that made us laugh so much during our lunches while we worked together in SCA. I always keep you in my prayers and I hope you get better soon my friend. Yanina